4 Aug 2025

cimorene: A painting of a large dragon flying low over an old pickup truck on a highway (dragon)
My dad (C5/6 quadriplegic wheelchair user) has been in and out of the hospital all spring and summer.

Initially, there was some kind of internal bleeding, I think, and he kept having very low blood pressure and cardiac events and then having to have his many medications adjusted. Then he had to have a colectomy, and then he got a persistently recurring UTI that is resistant to antibiotics. A lot of these times he's been carted off to the hospital it's been for low blood pressure or a slight fever, and it seems to my sister and me like they're just stabilizing him, tweaking his medication, and releasing him, sometimes the same day, only for him to be back in an ambulance in less than a week.

This is having a weird effect where it's cumulatively and abstractly more scary every time he goes, while at the same time it is becoming so familiar that it's starting to feel routine. I know this is why people got convinced they were safe from COVID after a few months of wearing a mask and why people are frequently injured in the streets near their homes: the cognitive illusion that an action is proved safe if you've done it a bunch of times and nothing bad happened. Or in the case of these hospital visits, bad things happened, but he didn't get seriously (ICU) ill.

It's rough on my sister, who lives with her husband and my parents in the US, and I can't really support her long distance very effectively. And even if it were safe to travel there now, there's no way to know how long it would keep happening, so it still wouldn't probably be practical for me to go.

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cimorene: cartoony drawing of a woman's head in profile giving dubious side-eye (Default)
Cimorene

January 2026

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